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What We Do

Research

Our Goal for Congenital Heart Defects


We are committed to supporting research in the area of pediatric cardiology. CHFN is actively involved in supporting research efforts aimed at improving the care and outcomes of children with congenital heart disease—and ultimately the prevention of this disease.
 

Know the Facts


  • Congenital heart defects occur frequently and are life threatening, yet research into them is grossly underfunded in relation to the prevalence of the disease.
  • Of every dollar the government spends on medical funding only a fraction of a penny is directed toward congenital heart defect research.
  • In the U.S., twice as many children die from congenital heart defects each year than from all forms of childhood cancer combined, yet funding for pediatric cancer research is much higher than funding for CHD.
  • In the last decade death rates for congenital heart defects have declined by almost 30% due to advances made through research.
  • There are 40 different types of congenital heart defects. Little is known about the cause of most them. There is not yet a cure for any of them.

We have provided funding to the following programs:

  • Children’s Hospital of Philadelphia: Long-term Single Ventricle Follow-up Program
  • Children’s Hospital of Philadelphia: Oxidative Damage to Bioprosthetic Heart Valves – Mechanisms and Prevention
  • Harvard Medical School & Boston Children’s Hospital: A program focused on the study of pulmonary hypertension
  • Children’s Heart Center Nevada: The Endoarterial Biopsy Catheter a new biopsy catheter for arteries in the lungs
  • Children’s Hospital of Philadelphia: Investigation of the Gut Microbiota When There is a Fontan Circulation
  • Children’s Hospital of Philadelphia: Lymphatic Abnormalities in Patients Undergoing Single Ventricle Corrective Surgery

 

With your help, TOGETHER, we will continue to support cutting-edge research that is making a differencefor children with heart conditions.

If you have any questions, please contact us.

Our Impact This Year

  • Families Impacted

    237

  • Volunteer Hours

    3,048

  • Family Financial Assistance

    $246,450

  • CHC
  • Southwest Gas
  • Channel 8
  • Security National Mortgage
  • First Foundation
    First Foundation
  • SCS
    SCS
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